Tag Archives: special needs

Helping Special Families

Posted on May 11, 2012 by

I can still remember walking out of Children’s Hospital on a September afternoon in 1998. My brain struggled to process the geneticist’s diagnosis that my 22-month-old daughter had Cornelia de Lange Syndrome (CdLS). Caused by a rare and random genetic … Continue reading →

Posted in Outreach, Special Needs | Tagged , , | Leave a comment

Mentoring

Posted on March 16, 2012 by

To be successful in life, you need a little help. Especially in the form of an advisor or mentor. Someone to train you in the best way to do your job or show you the best way to live life. Someone to … Continue reading →

Posted in Friends, Journey | Tagged , , | Leave a comment

Not From Concentrate

Posted on August 10, 2011 by

When it comes to making lemonade, I’ll admit I’m the first to reach for the can of frozen concentrate. Just add water. As my seven-year-old son says, “Easy-Peasy-Lemon-Squeezy.” But to make old-fashioned, fresh-squeezed lemonade, we have to get messy. Find the … Continue reading →

Posted in Family, Special Needs | Tagged , | Leave a comment

Making Lemonade – FREE for a Limited Time

Posted on June 17, 2011 by

When life gives you lemons, how you approach, process, and transform them makes all the difference. Especially for parents facing the sour experiences of raising a child with developmental, behavioral, and/or health needs. Making Lemonade: Parents Transforming Special Needs incorporates … Continue reading →

Posted in Special Needs, Writing | Tagged , , , , | 1 Comment

Overcoming Obstacles

Posted on August 26, 2010 by

Imagine facing a mountain over 19,000 feet high. Do you think you could make it to the top? Now imagine facing the same mountain without your legs.   That’s what happened recently, when three American veterans from three different wars … Continue reading →

Posted in Special Needs | Tagged , | Leave a comment

Leaning Towers

Posted on August 12, 2010 by

An estimated one million visitors flock annually to view a bell tower on the coast of Italy. Constructed from 1173 to 1370, it is just one of many examples of ancient architecture. But there’s something different about this tower in … Continue reading →

Posted in Family, Special Needs | Tagged , | Leave a comment

What’s in a Label? Autism

Posted on July 29, 2010 by

As I’ve shared before, my 13-year-old daughter has Cornelia de Lange syndrome. It’s a rare genetic syndrome resulting in growth delays, developmental delays and autistic-like behaviors. At least, that’s the way I used to describe it. Now, I may be … Continue reading →

Posted in Family, Special Needs | Tagged , , | 2 Comments

Celebrating Differences

Posted on June 9, 2010 by

This past weekend, my special-needs daughter was special for another reason. Anna was the center of attention, courtesy of the Special Olympics. The party started with the Law Enforcement Torch Run. As part of a fundraiser for the Special Olympics … Continue reading →

Posted in Family, Special Needs | Tagged , | 2 Comments

Friday Focus – Patrick Henry Hughes

Posted on February 5, 2010 by

What if you were born without eyes or the ability to straighten your legs and walk? How would you describe your disabilities? Well, if you were Patrick Hughes, you’d say, “Not disabilities at all. More … ability.” He began playing … Continue reading →

Posted in Focus, Special Needs | Tagged , , , | Leave a comment